Just got word that Isabella will be going this week for her injections. This past week has been tough on her. The cold virus she caught has turned to congestion and a cough. We are doing breathing treatments every 4 hours and her joints have been swollen and feverish this past weekend. Her Doc called last night and we put her on predisone for 3 days to help keep the swelling down and help her lungs. We are going to give Enbrel a few more weeks and if she doesn't improve we will start infusion thereapy. Doc. had told us that Enbrel doesn't usually work on patients with the HLA-B27 tissue type. So, at least we are prepared!
As for the appt, we arrive at 8am and they will put her to sleep then do the injections. It should go well. She will be a little sore but she is a Rock Star!
We started our a team for this years Jingle Bell/run/walk. The team is called Isabella's Jingling Joints. Please join us on our walk! We need to show everyone that we are a united front supporting all the children and adults with Arthritis!
A new chapter in our life. A loving family of four. Learning about Rheumatoid Athritis and learning about life with a 4yr old and 6yr old in pain and their strength to live life fearless!
All About Us!
- Larry, Samantha, Devon and Isabella
- Adventureous! We are a family that is not only fighting for our childrens health but for a cure! JIA not only affects Devon and Isabella but also our family. It is a journey that we are all choosing to be on together. We alone can not make a better world for her but with the help of family and friends and our GOD, helping them live will help others too. Knowing more about JIA will make us all a little less scared and whole lot closer as a family! Cuz' baby, that is what IT IS ALL about!
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